What is rare patient voice?from rarepatientvoice.com
Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
What happens when you join Rare Patient Voice?from rarepatientvoice.com
When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.
What happens when you join Rare Patient Voice?
When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.
Who knows better than you about your journey and experiences?
Who knows better than you about your journey and experiences? We hear from patients all of the time about their unique experiences. Only you know what you have gone through and what you need! Sharing your voice can help you as well as those coming after you. The patient voice needs to be heard so that companies develop products and services that have a meaningful impact on patients’ lives. We connect you with researchers who are developing these products and services. Your voice can help you and others with your condition.
What is rare patient voice?from rarepatientvoice.com
Rare Patient Voice, LLC provides patients and caregivers with rare diseases an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
What happens when you join Rare Patient Voice?from rarepatientvoice.com
When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.
What is the purpose of Project Patient Voice?from fda.gov
The aim is to show patient-reported symptom data consistently from select cancer clinical trials of approved products. This data is usually not in the US Prescribing Information (drug label) but can give healthcare providers extra information to discuss with patients and caregivers. If you are a patient or caregiver, and have questions about what you see here, ask your healthcare professional for more information.
Can you rely on Project Patient Voice alone?from fda.gov
You should not rely on Project Patient Voice alone to make decisions about medical care. You should not use Project Patient Voice to substitute for advice from your healthcare provider. Conclusions about patient symptom experiences may be limited, because not all symptoms may have been collected by the survey.
